COMPARE-UF
COMPARE-UF: Using a Registry to Help Women with Fibroids Share Their Stories to Improve Care
COMPARE-UF is a regristry that is funded by the Patient-Centered Outcomes Research Institute and administered by the Agency for Healthcare Research and Quality. The registry is a way for patients to share their “story” about their fibroids symptoms, their treatments, and how the treatment worked in a way that lets researchers collect what patients tell them and translate that into “scientific” evidence. That evidence can then be translated back into messages that can help patients and doctors decide what’s best. COMPARE-UF will follow 10,000 women from nine medical centers in the U.S. for about three years as they make decisions about treatment for their fibroids. Participants are women between the ages of 18 and 54 who have been diagnosed with uterine fibroids and who are not in the transition to menopause.